agoodwinsmith: (Default)
So. Much to my surprise, my CPAP machine was replaced by the company.

All my hoses and masks still work with it. It is smaller, a little more awkward (I tend to spill the water when refilling the humidity tank), and has a snazzy touch screen. The touch screen would be more exciting if it actually let you see and do more things, but hey.

I got it through the sleep clinic, who moved my SIM card from the old to the new.

I haven't had any more tests to give me concrete comparison numbers, but in general I feel better. I still want to go to bed at 4:00 am and get up at noon, but that hasn't changed for fifty years, so why would it now?
agoodwinsmith: (Default)
So, I have used my CPAP every night since 03 November 2021.

I recently had a heart ultrasound, and the pressure in the right thingy of my heart is substantially improved.

I don't know the units, but the normal range is 20 to 30, and my last measure was 83, and now it is 56. So, more improvement is needed, but this is a big step in the right direction.

The nose mask is still silly but okay, and I can sleep with it fine.

The new problem is that my Suzi feels that it is meant to be a platform for her to parade on with her pointy toes, which leave holes in the hose (thank you so much), so I have had to get a basket arrangement to cover it. I found the perfect thing: it is a rectangular basket, with a wicker edge and bottom, held apart by an arrangement of wires like a jail. I use it upside down, so the cat can park on top of it, but the electrical cord and the hose can fit through the bars. Also, the machine still has ventilation so it doesn't overheat. I did have to discourage her from reaching through the bars for the hose. What a clever girl.

Yay CPAP. Sis Boom Bah. Chachacha.
agoodwinsmith: (Default)
So. It's been 5 plus weeks since I resumed the use of my CPAP machine. I am using this nose mask:
https://cpapmachinescanada.ca/products/airfit-p10

It's pretty silly, but I can sleep with it on.

Do I feel better? No. Do I feel worse? No.

However - I have a self-healing mind. What I mean by that is that whatever I am feeling now, is what I have always felt (we've always been at war with phantom gorillas). I experience this with antidepressants. My experience is that I stay the same and the world gets nicer. My friends say I change. I experience this with my hair. When I go into a new-to-me public washroom, and catch a glimpse of my hair in the mirror before I realize I am seeing myself - hoo boy do I have gray hair (a bit of a silvery gleam, in fact). When I look again once I know I am seeing me, I see mousey brown graying hair that still looks blondish-really.

So. It is possible I am feeling better, and I am just accepting it regally as the way I always feel.

I dunno, but go me, I'm able to use it nightly without distress, so that's a win.
agoodwinsmith: (Default)
So. CPAP, blah blah.

Previously I talked about getting the nose mask to try. It actually worked quite well - and then I got the letter from Phillips explaining the possibility of styrofoam (or whatever sound-deadening hydrocarbon-emitting petrochemical it might be) crumbling and off-gassing cancerous bits. Hurrah. So I stopped using it and sent a letter to four of the crowd of doctors currently meddling in my life, saying I was instructed to contact my medical professional, but I wasn't sure which of them might be in charge of this.

Ultimately it was the lung doctor (the bronchoscopy guy) who contacted me, and carefully explained what to watch for to see if my machine was actually affected (crumbles in the humidifier water - none), and that I really really really should use the machine because heart. Okay.

I am surprised as how well the nose mask is working for me. I am/have been a terrible mouth breather with pools of drool (sorry), however, the pressure in my head is enough that the sensation changes in my ears when I open my mouth, so it is enough to get me to close my mouth without waking up. I know that I am sleeping with my mouth closed because my tongue is *not* as dry as sandpaper in the morning, which used to be usual.

And this time I am sleeping normally. I do wake in the night, but it's normal bladder importunance, and returning to sleep is not a problem. I am also not waking up without the mask. I have better hopes of continued adherence this time.

Honest to heck, what a song and dance, y'know? However, I am grateful that this doesn't involve any cutting of my person, so forward we go, yes/no?
agoodwinsmith: (Default)
So. While I was being prepped for the bronchoscopy, one of the things they had me hooked up to was an oximeter, which measures the percentage of oxygen in one's blood. They had it set for an alarm every time it fell below 90%.

I was practicing breathing in time with an encouraging phrase (I am a grateful being full of light and love), which, because it was 7 freaking o'clock in the morning, kept leading me to drift into sleep. Every time I drifted into sleep, the alarm went off.

As I have mentioned once or twice, I have been very skeptical of the reports about how many times an hour I "stop breathing", especially in a claustrophobic room with lousy pillows and medical equipment bed hogs. I couldn't have slept long enough for anybody to count that many stops.

However, it is obvious now that my ability to wring oxygen out of the air I am breathing when I am asleep is compromised, and who knows how low it goes and for how long?

Okay. This makes more sense to me. I shall pursue the alternative mask.
agoodwinsmith: (Default)
I wish to announce a certain type of victory.

I have now had a night where I took off the mask in my sleep, woke up and put it back on, and when I woke up in the morning the mask had been removed in my sleep again.

Tell me again how much trouble I am having sleeping?
agoodwinsmith: (Default)
So I am now the proud owner of my very own CPAP machine. It is exactly the same as the one I borrowed.

I think that the CPAP is helping. The improvement is gradual, so each day becomes "I always feel like this" (I have a very strong conviction that I am constant and it is always the world that changes - I know this is not true, but knowing in the head and knowing in the heart are different). However, I am also having trouble tolerating the mask and have a habit (which I am currently breaking) of waking up, saying "hurrah, I shall start my day[1]", taking the mask off and falling back to sleep. Last time I did this I slept for four hours without the CPAP, and I definitely felt loggy and stupid and sedentary all day.

I gotta tell ya, though, the *drool* is nearly a deal-breaker. I have always drooled, and apparently now is not the time to break a lifelong tradition. Argh. And bleah.

So. I need you to imagine me as one of those heroic Art Deco figures, all massive and muscly and gleaming and stern, standing on the hill on the horizon, with the rays of the sun shining approvingly in my direction, and the wind rippling through my perfectly curled sausage curled hair. A painting by Tamara de Lempicka.


[1] - I *never* say "hurrah I shall start my day".[2] There is never even a hint of hurrah.

[2] - know the rules about punctuation inside quotation marks, but I think they are stupid, and I use my own rules.

So, CPAP

Mar. 8th, 2021 01:47 pm
agoodwinsmith: (Default)
Okay, six days does not a sample make, but I am underwhelmed.

I have, so far, knock on wood, kept the girls from damaging things, so yay.

Do I sleep better? From my perspective: no. I felt I slept pretty well before. Since this is new, I am currently dealing with the irritant factors of wearing something on my head and on my face while trying to sleep. Bleah. To give it its due, though, the harness and facemask are as lightweight and soft as you could want (I bet someone forced to wear one came up with both designs). The mask is a little odd because it has a cradle for the nose with two nostril holes.

I am using a fancy machine that has a humidifer for the air, and a heated hose to temperature-control the air. Suzi really wants to drink the water when I fill the reservoir each evening.

I have discovered a few things. I have discovered that if you are wearing the mask before sleep, just to accustomize yourself and fiddle with fit, the machine detects your breathing and turns itself on. Hey there big fella, not so fast. I have discovered that if you can hear the machine then you probably haven't closed something properly.

I don't feel particularly energetic, and the water weight went up, so this is a bit like when I was sent to the hospital at age five to have my tonsils and adenoids out - promised jello and ice cream, given nothings and shut-ups.

One continuing troubling thing is the air farting out around the edge of the mask. The edges vibrate when it does that, and it's noisy, and, as I was warned by Dewline, the fart shots in the eyes are not peace-inducing. If I tighten the head harness until it can't do that any more, I would have a headache before I fell asleep. I have, however, discovered that one can jam some or all of one's face into the pillow because the mask continues to deliver air.

One thing I am not sure whether or not to be worried about. When I first turn the CPAP on, it feels like someone is trying to blow up my head like a balloon - a real sensation of pressure - and yes, my cheeks balloon out. It also makes my ears pop. I had a lot of sinus trouble as a kid (the reason for the tonsilectomy - which didn't work, by the way), and one of the uncomfortable symptoms was pressure in my ears.

Well, I will continue to use it, and get better at managing the fiddly bits, but currently I do feel like I looked like a wallet walking around.

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